CAT Scan and updates

I had a Cat scan of my abdomen in the morning. A test that my Infectious Disease Dr. has ordered on me so that he can find a baseline. He still/ There is still no answers to my fevers, but they have been happening for 6 months now. We have to find an answer soon. I have at least 3 surgeries to be had as soon as I'm cleared from the ID Dr.


I'm not doing well, since I had my pneumonia in July. I don't leave the house much, unless to go to the Dr. I don't drive much, and I don't drive within a mile radius from my house. I sleep a lot, I'm on A LOT of meds, mainly pain meds. I don't eat much, and my body is getting less tolerant of foods.

Last year my room was cluttered with feeding tube stuff. Cans of formula, an IV pole and my feeding machine. This summer I have no more feeding tube stuff, I have breathing stuff. I have bottles of oxygen, an oxygen concentrator that makes its own oxygen, a nebulizer to help clear my lungs, and miles of tubes to help me breathe. My oxygen numbers have been low. Normal is 95-100, mine is 80-92.

Pray that an answer to my fevers would be found soon. I need to have these surgeries soon, but only when I'm fever free or else my body will reject whatever is inserted/implanted in me.


Update on my aunt:

She got her stitches out last week. She has a big surgical boot on now. She is in a wheelchair, because she is too wobbly on crutches. She will have to be off her foot (no weight at all) for 6 months. It will take up to a year for her to return to everything that she did before her accident/surgery. Please pray that her work situation will be figured out. She works in San Antonio, and she drives a hour to work each day. She can't drive anymore. She is workng from home as much as she can, but that is still not enough.

PICC line or Central Line

I am seriously thinking of getting a PICC line or central line, or some other permanent line put in becuase my veins are no longer useable for getting blood or getting IV's and with atleast 1 and maybe 2 more surgeries coming up I will have to have an IV.

I had my cardiac MRI on Tues. and they couldn't use contrast (which is what the Dr. ordered) because they couldn't get an IV started. I had 2 nurses and a Dr. try and got stuck 8 times all with no luck. Last week for my chemical stress test it took a hr to get a tiny iv started and it didn't last but 30 min, before it blew.
I had a NICU nurse who transferred to adults tell me that for 25 yrs she could stick every preemie baby, but she couldn't get a stick in me. It's very embarassing and almost humiliating that no one can get IV's in me anymore.
When I had sepsis they had to stick me in my neck because they couldn't get it anywhere else.
I've had PICC lines before and I had a central line when I had sepsis. But, what is a good line for semi- permanent use? Something that can get blood out of but put meds into. Something that is long lasting (maybe 3-6 months)?
I know that having a semi-permanent line puts me at a high risk of getting sepsis again, but it will be so much better than being a human pin cushion.

Any opinons or suggestions would be greatly appreciated.

Medical Update for this week

This is going to be a big week for me health wise.
Today I went to my pain management Dr. and had a long talk about my meds, and other social and psychological issues concerning my meds and my illness.
On Thursday I will be having blood work done to test my kidney function and some other things related to a new drug that I started that requires blood work every month. I have to be fasting for 8-12 hrs on for this blood work. But, the bigger thing is that I have to be fasting all day for my Hydascan, and it isn't until 1pm, and then the test takes 2-3 hours. So, by the time the test is over I will be starving. Luckily, there are many restaurants in the area where I will be having my test and blood work, so I can stop in and eat anywhere.
Also on Thursday I am having a Hydascan done, which will determine how much my gallbladder is or isn't working. If it isn't working, than my surgeon will remove it, if it is working, than I will be very upset, because that will mean more questions than answers.
So, my odd prayer request for the week is that the Hydascan WILL show that my gallbladder is not working. My grandfather died of gallbladder issues this past Dec., so we know gallbladder issues run in the family.
Please also, keep me in your prayers all the way around. I'm going through a really hard time right now, because my life has been put on hold, and I am having to try to find a "new" life.