Sunday, September 14, 2008

Sunday night

Today has been a lazy day. I haven't felt well today, and had too much pain while taking a tube feed that I stopped. I'm calling the GI Dr. in the morning to try to get in sooner. I've been in so much pain the past few days that I am thinking about putting on a fentyl pain patch. My tube site is trying to heal, but can't so it had been bleeding and oozing last night and today. It is red and sore, but the surgeon says that is normal. This week will be 6 weeks with the tube.
My new battle had to do with my stomach and brain battling each other.
Because my tube is in my small intestine, it bypasses my stomach. But I still get all the nutrients I need through my tube, when I take feeds. Even still, my stomach is telling my brain that it is starving, which is causing me to eat substanial amounts of food which makes my stomach and body worse. It is a daily, minute by minute struggle, that I don't know how to win or if I will win.

My brother and family survived the hurricane and is working on a way to get to Austin, as their city is being shut down until they get water, power, and get cleaned up. My dad's best friend ( who is a woman), and her roommate and cat are also working on a way to get to Austin to stay with my dad, as their city has no water or power either. And it maybe weeks before either city has power and water.

I didn't make it to church this morning or this evening. I just didn't feel like it and couldn't talk myself into going. But, this week I will be starting a new Bible Study/ Community Group and I am hoping that it turns out to be OK. I left my old CG due to girl drama. Yes, even young adult women have girl drama. I'm really wanting to meet some new people and make new friends. My CG was the only connection I had to the outside world, and now I have lost that. I have been so lonely at home. I still don't have much stamina and get tired quickly.

I better get strong quick because I signed up to be a volunteer with the Lance Armstrong LiveStrong Challenge next month in Austin.

But I signed up for that for 2 reasons. 1 ~ I love volunteering and although I know that I am not strong enough to walk 5 kms, I knew that I could be a volunteer for a few hours. 2~ My best friend and I are going to the Carrie Underwood concert the weekend after the challenge, so working it will be like a test to see if I can make it through the concert. We bought tickets before I got sick the last time, but we both love Carrie Underwood, and I don't want to let my friend down by not going.
That's all for now, got to back back to lay on my heating pad.

1 comment:

Heather @ A Boy, A Girl, A Pug said...

I just found your blog and am trying to figure out your story.

I think we have a couple things in common, first I found out I had cancer on July 8th. cancer sucks!

Second, we had to put our Boxer dog to sleep on March 17th so I know your pain there also.

It's tough losing someone (or dog) that you love so much. Feel free to stop by my blog. Would love to hear from you.