Monday Updates

I have REALLY GOOD news, really BAD news, and "Is it Over yet" news.

I'll start with the good. Stellan was discharged from the hospital this morning and will be returning home TOMORROW!!! His heart is better, he is looking and feeling better and boy does his mom want to be home.
Bad news, Dakota has taken a turn for the worse. All I know is the she has a really HIGH fever, her BP is all over the place, and she has several infections she is trying to fight. She was moved from her regular room to the PICU this afternoon.

IIOY - I made another trip to the ER last night. Had 1 test ran, loaded up on pain meds, and was sent home. I have an appt. with MY GI Dr. TOMORROW afternoon. Things will be said/ done at this appt. that will change my life. I won't leave unless this happens. The Dr. may have given up on me, but I have not given up on me. Pray that things go well and I get answers, and if not those than the help that I need NOW.

Please also take time to visit Kayleigh & Gavin's links to the left of this post. They are both need extra prayers this week. For Kayleigh, as she fights to live. For Gavin as he fights his disease and subsquent hospitalizations.
Tricia is at home and doing better.

Ch- Ch- Ch- Changes...

Today was another good day, but BIG in changes.

I saw a new Dr. today and spoke with (and never speak with again) a different one.

The old Dr said this: " I will see you, but not prescribe any drugs!?!?! WTF?!?!?" OK, you're a pain management Dr, I have a current prescription from you and you will not refill it and not give me any thing to help my pain.

Finding a new pain management Dr. is number one on my list for Monday morning.

I also saw a new Dr. this afternoon. He was nice, I liked him, he has this great "treatment" plan in mind, but it will takes many weeks, if not several months for the new drugs to kick in. In addition to the new meds, I can no longer have ANY of the following:
caffine (including, but not limited to CHOCOLATE, cokes, tea, chocolate chip cookies, none)
decongestants (otc cough syrup), no hydro or oxy codine (won't be a problem, I'm allergic to codine) , no ativian (my panic attack med).

But, the new drug is something that I am ALREADY on, in small doses, and we're hoping that this 1 drug (in a higher level dose) will help all 4 issues. Plus it cheap and generic, good for someone with no insurance.

In additions to starting this new drug, I am going to have some blood work done to test my thyroid and my estrogen levels. He thinks something maybe off on both of those, and seeing that both of those topics run in the family and my mom and had surgery to remove her thyroid, I can see where he is coming from.

I am really hoping that from the standpoint where I am coming from that this Dr. will help me get some of my life back on track.

On a similar, but bit different side note, I have been talking to the office manager at my GI Dr.'s place, and at this point I have about 2 options: 1- wait it out, let the pain become unbearable, to go to the ER, get admitted, and my GI will be able to do something NOW instead of having to wait 2 months to get into the office to see him, so that he might be willing to do something. Choice 2 - do nothing, let the pain rule my life, stop all eating & tube feeds, wither away and die.

Choice 2 is NOT the option I am taking, so somehow choice 1 is my ONLY option at this point. However, I have promised myself that I would NOT go to the ER this month, and there's only a few days left.

This is all becomeing very redundant to me, and I'm living last year over in my mind. The only difference is I'm NOT in the hospital and I'm NOT on pain meds!!

Oh I just want this nightmare to go away, and I want to find a DR. that knows something, anything about my conditions, and can help me.