Last week was a really crappy week because I had 2 really good "leads" as far as medical stuff goes.
The first was for a local health clinic, and the second was an appt. with a local surgeon that does a fairly new surgery that would help me stomach.
The first fell through, because I don't make enough money. A person has to make $1,300 a month, and my disability checks are only $528 a month.
The appt. with the surgeon fell through because they wouldn't accept me because I don't have insurance. And my normal surgeon doesn't do that sort of surgery.
But also during this past week, I have been in alot of pain, especailly when eating, and because of that I have lost 10lbs in 1 week.
The only and last chance is to go back to my reg. surgeon and see if he will put a new feeding tube in. But, the entire reason why I stopped doing tube feeds was because it hurt too much.
When I was in the ER in December the ER Gastro. Dr came to the conclusion that I need to have exploratory surgery in my digestive tract to see what was going on and causing all the pain and trouble eating.
I don't know if my reg. surgeon would do that.
So, I am at a dead end road. And I'm sick of this. I want my old life back and I don't want to keep being sick. And we are coming up on 1 year of dealing with this, still with NO answers.
I have no friends, and I'm so lonely. I haven't been to church in 6 months and I miss it so bad. I have no church family that would do "church famly" things because I was in the middle of switching churches before I got sick. I don't want to spend time with the family, because every family function revolves around eating, and I CAN'T DO THAT!!!
I feel that no matter how many people pray, I keep getting worse. I don't have any energy to get out of the house because I can't eat, but yet my mom harps on me to get out of the house, but when I try, I run out of stamina quickly.
I don't know what else to ask people to pray for that hasn't already been prayed for. I just know that I can't keep go like this much longer.
Please just pray that something will change.
We are so glad that it is summer break. It seemed that we were really
looking forward to it this year. Both girls had a good year at Freedom
Prep. Ol...
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