CAT scan update & sick

I'm sorry that I didn't update sooner on how my CAT scan went, but it was a nightmare and very traumatic experience.


First off, I needed to get there at 8am, we live a hour away from the hospital/clinic, and we left late. So we got there late. I got signed in, the tech came out with my cup of barium (which I had already told the previous tech when I called to put on my chart that I would NOT drink the barium) Barium = liquid contrast. The tech explained to me that without the contrast the scan would not look good, yes I already knew that, but I physically can't drink the barium or I get very sick. So, then the tech brought me back to the IV room, and that's where the nightmare began. I got stuck 5 times by 2 different nurses. Each stick hurt more and more. By the end of 30 min. I was on a lot of oxygen because I was so close to passing out, from the heavy breathing and the pain from being stuck so many times.

So, I ended up having no contrast at all, which the radiologist wasn't happy about, but there was nothing more that I could do. But this isn't the first time this year I have had a scan with no contrast.
 In May, when I had my cardiac MRI, I got stuck 9 times, all with no luck, so I got no contrast for that scan either.

For those that don't know, contrast helps to outline/ show more of the organs. The use it for special MRI's and CAT scans.

Also, Sunday night I got really sick and I still am. My fever spiked to 102.5 (103 is my limit to take a trip to the ER). My oxygen stats were really low, so I required more oxygen for most of the night.

Plus, I had been up since Wednesday with very little to no sleep at all. I slept most of the day Monday, but my fever is still elevated and I'm still on the oxygen. I haven't gotten out yet while on the oxygen, so I've had to cancel all appts. for Monday and Tuesday.

However, I have 4 Dr. appts. next week. I'm going to see my Infectious Disease Dr. , my cardiologist, my pulmonologist, and my pain management Dr.

Please keep me in your prayers as I recover from being sick, and I can get more sleep. I've also screwed up my knee again (the same knee I fractured in February). I have been really hurting and can't put a lot of weight on it. Pray that it gets better.

CAT Scan and updates

I had a Cat scan of my abdomen in the morning. A test that my Infectious Disease Dr. has ordered on me so that he can find a baseline. He still/ There is still no answers to my fevers, but they have been happening for 6 months now. We have to find an answer soon. I have at least 3 surgeries to be had as soon as I'm cleared from the ID Dr.


I'm not doing well, since I had my pneumonia in July. I don't leave the house much, unless to go to the Dr. I don't drive much, and I don't drive within a mile radius from my house. I sleep a lot, I'm on A LOT of meds, mainly pain meds. I don't eat much, and my body is getting less tolerant of foods.

Last year my room was cluttered with feeding tube stuff. Cans of formula, an IV pole and my feeding machine. This summer I have no more feeding tube stuff, I have breathing stuff. I have bottles of oxygen, an oxygen concentrator that makes its own oxygen, a nebulizer to help clear my lungs, and miles of tubes to help me breathe. My oxygen numbers have been low. Normal is 95-100, mine is 80-92.

Pray that an answer to my fevers would be found soon. I need to have these surgeries soon, but only when I'm fever free or else my body will reject whatever is inserted/implanted in me.


Update on my aunt:

She got her stitches out last week. She has a big surgical boot on now. She is in a wheelchair, because she is too wobbly on crutches. She will have to be off her foot (no weight at all) for 6 months. It will take up to a year for her to return to everything that she did before her accident/surgery. Please pray that her work situation will be figured out. She works in San Antonio, and she drives a hour to work each day. She can't drive anymore. She is workng from home as much as she can, but that is still not enough.